European Prospective Registry on Anomalous Aortic Origin of the Coronary Arteries
Anomalous aortic origin of a coronary artery (AAOCA) is a group of rare congenital heart defects with various clinical presentations. The lifetime-risk of an individual living with AAOCA is unknown, and data from multicentre registries are urgently needed to adapt current recommendations and guide optimal patient manag
| Condition(s) | Congenital Heart Disease, Coronary Artery Anomaly, Sudden Cardiac Death, Surgical Procedure, Unspecified, Diagnosis, Arrhythmia, Heart Defects, Congenital, Adult Children |
|---|---|
| Status | Recruiting |
| Study type | Observational |
| Summary | Anomalous aortic origin of a coronary artery (AAOCA) is a group of rare congenital heart defects with various clinical presentations. The lifetime-risk of an individual living with AAOCA is unknown, and data from multicentre registries are urgently needed to adapt current recommendations and guide optimal patient management. The European Registry for AAOCA (EURO-AAOCA) aims to assess differences with regard to AAOCA management between centres. |
| Who can participate | Inclusion Criteria: * All patients with a diagnosis of AAOCA (either referred to surgery or to medical follow-up ) Exclusion Criteria: * isolated high-coronary take-off (≥ 5mm above sino-tubular junction), anomalous origin of a circumflex from the right coronary artery, anomalous course with a normal origin, and association to major congenital heart disease (i.e. Tetralogy of Fallot, transposition of the great arteries, anomalous origin of a coronary from the pulmonary artery). |
| Sex | All |
| Lead sponsor | University of Padova |
| Locations | Padova, PD, Italy; Bern, Switzerland |
| Start date | 2019-01-01 |
| NCT ID | NCT06089902 |
| Official listing | https://clinicaltrials.gov/study/NCT06089902 |