Experiences of Managing Sleep Disordered Breathing in Children With Cerebral Palsy.
Cerebral palsy (CP) refers to a non-progressive movement disorder, which occurs due to damage to the developing brain around the time of birth. Symptoms of sleep disordered breathing (SDB) include noisy breathing during sleep, increased day-time sleepiness and reduced energy levels. In the long term, SDB might have an
| Condition(s) | Sleep Disordered Breathing (SDB), Cerebral Palsy (CP), Respiratory Support |
|---|---|
| Status | Recruiting |
| Study type | Observational |
| Summary | Cerebral palsy (CP) refers to a non-progressive movement disorder, which occurs due to damage to the developing brain around the time of birth. Symptoms of sleep disordered breathing (SDB) include noisy breathing during sleep, increased day-time sleepiness and reduced energy levels. In the long term, SDB might have an effect on the brain and learning, as well as putting strain on the heart. Children with CP have a higher risk of sleep breathing problems compared to typically-developing children. The negative impact of sleep disturbance in children with CP, on their family members/carers' sleep and mental health cannot be understated. Early recognition and management of SDB is important for children with CP to give these children the best possible sleep quality, and to maximise learning pot |
| Who can participate | Inclusion Criteria: \- Children and young people with CP and SDB; * Children and young people aged less than (but not including) 16 years old * Formal diagnosis of Cerebral Palsy * Formal diagnosis of Sleep Disordered Breathing (currently or previously managed with respiratory support) * Able to understand, communicate (with or without aids) and engage with interview (guided by parents/carer opinion on capacity to engage in interview) Parents/carers of CYP with CP; * Parents/carer of CYP with CP and SDB being (or has been) managed with respiratory support Health care professional; * Professionals (based in community or hospital setting) involved in the management of SDB in CYP with CP Exclusion Criteria: * Children and young people with CP and SDB and their parents/carers; * CYP with CP on |
| Ages | 1 Month to 16 Years |
| Sex | All |
| Lead sponsor | University of Edinburgh |
| Locations | Edinburgh, Edinbrugh, United Kingdom; Edinburgh, Merseyside, United Kingdom |
| Start date | 2025-02-28 |
| NCT ID | NCT06753370 |
| Official listing | https://clinicaltrials.gov/study/NCT06753370 |