Improving Diagnostics and Care After First Seizure
A first epileptic seizure is a distressing experience, often leading to a complicated and discouraging journey before an epilepsy diagnosis is confirmed. Early diagnostics can help alleviate this uncertainty. It is important to note that seizure mimics and suspected epilepsy are more frequently encountered than an actu
| Condition(s) | First Suspected Epileptic Seizure |
|---|---|
| Status | Recruiting |
| Study type | Observational |
| Summary | A first epileptic seizure is a distressing experience, often leading to a complicated and discouraging journey before an epilepsy diagnosis is confirmed. Early diagnostics can help alleviate this uncertainty. It is important to note that seizure mimics and suspected epilepsy are more frequently encountered than an actual first diagnosis of epilepsy or an epileptic seizure. Conversely, delays in diagnosing epilepsy are also common. The current evidence base on first events that may be epileptic remains limited. First seizure clinics, which provide specialized care for these cases, are becoming more common globally, but none have yet been established in Norway. There is a pressing need to assess the prevalence of first-seizure-like events in Bergen and the surrounding areas, as well as to in |
| Who can participate | Inclusion Criteria: * The patient has experienced events with a substantial suspicion of being an epileptic seizure. One of: * The patient has experienced one or more first-in-life events with a substantial suspicion of being an epileptic seizure, including febrile seizures, and these episodes have previously not been evaluated by a neurologist or pediatrician OR * The patient has experienced the recurrence of events with a substantial suspicion of being an epileptic seizure, that have previously been evaluated by a neurologist or pediatrician to not be epileptic, and this merits a new evaluation. * OR: The patient does not fulfill the criteria above, but has been investigated for episodes or complaints, which after evaluation have been shown to be first-in-life epileptic seizures. OR -The |
| Sex | All |
| Lead sponsor | Haukeland University Hospital |
| Locations | Bergen, Norway |
| Start date | 2025-01-24 |
| NCT ID | NCT06814665 |
| Official listing | https://clinicaltrials.gov/study/NCT06814665 |