Modifiable Variables in Parkinsonism (MVP)
We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask partic
| Condition(s) | Parkinson's Disease, Parkinsonism, MSA - Multiple System Atrophy, Progressive Supranuclear Palsy, Shy-Drager Syndrome, Corticobasal Degeneration, Dementia With Lewy Bodies, Pick Disease, Olivopontocer |
|---|---|
| Status | Recruiting |
| Study type | Observational |
| Summary | We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years. |
| Who can participate | Inclusion Criteria: * Parkinson's disease (PD) * Parkinsonism * Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies) * Must have online access, an email address, basic computer literacy * Must be willing to complete online surveys every 6 months for 5 years Exclusion Criteria: * Inability to read/write English * Inability or unwillingness to complete surveys every six (6) months (\~90 min) |
| Ages | 19 Years |
| Sex | All |
| Lead sponsor | Bastyr University |
| Locations | Kenmore, Washington, United States |
| Start date | 2012-09 |
| NCT ID | NCT02194816 |
| Official listing | https://clinicaltrials.gov/study/NCT02194816 |