PSYLIVED: the Psychological Impacts of Living With an Inherited Colorectal Cancer Predispo
Why? PSYLIVED is a qualitative study that aims to understand the psychological experience of individuals living with inherited colorectal cancer. It addresses the question of how individuals cope emotionally and adapt to the unique challenges they face. This research sheds light on the emotional journey of those with i
| Condition(s) | Lynch Syndrome, Polyposis Syndrome, Hereditary Mixed, 1, Polyposis Syndrome, Hereditary Mixed, 2 |
|---|---|
| Status | Recruiting |
| Study type | Observational |
| Summary | Why? PSYLIVED is a qualitative study that aims to understand the psychological experience of individuals living with inherited colorectal cancer. It addresses the question of how individuals cope emotionally and adapt to the unique challenges they face. This research sheds light on the emotional journey of those with inherited colorectal cancer, potentially leading to improved support services, interventions, and care practices tailored to their needs. The study seeks to enhance the well-being of patients undergoing genetic testing and contribute to better services and support practices. What? PSYLIVED is a qualitative study that will employ reflexive Thematic Analysis methodology to explore the emotional responses and experiences of participants over time. Who? The investigators are inter |
| Who can participate | Inclusion Criteria: * Adults aged 18 years or older, residing in the UK. * Diagnosed with inherited colorectal cancer or likely to have inherited colorectal cancer and have been offered genetic testing for this reason. * Possess the capacity to provide informed consent. * Able to communicate in English. Exclusion Criteria: * Under 18 years old. * Unable to communicate in English. * Experience significant learning or communication difficulties. * Reside outside of the UK. |
| Ages | 18 Years to 99 Years |
| Sex | All |
| Accepts healthy volunteers | Yes |
| Lead sponsor | London North West Healthcare NHS Trust |
| Locations | London, United Kingdom |
| Start date | 2024-06-18 |
| NCT ID | NCT06447961 |
| Official listing | https://clinicaltrials.gov/study/NCT06447961 |