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Retinoblastoma Patient Clinical Database and Tissue Repository

Retinoblastoma (RB) is a primary eye cancer that forms in the back of the eye of infants and toddlers. Traditionally, RB is diagnosed without a biopsy; tumor can only be studied once an eye has been surgically removed. Given this limitation, we use aqueous humor (AH), the clear fluid in the front of the eye to detect s

Condition(s)Retinoblastoma, Retinoblastoma Bilateral, Retinoblastoma Unilateral
StatusRecruiting
Study typeObservational
SummaryRetinoblastoma (RB) is a primary eye cancer that forms in the back of the eye of infants and toddlers. Traditionally, RB is diagnosed without a biopsy; tumor can only be studied once an eye has been surgically removed. Given this limitation, we use aqueous humor (AH), the clear fluid in the front of the eye to detect specific markers, or information, that comes from the tumor itself.
Who can participateInclusion Criteria: * All patients, age 0 days to 18 years, with a diagnosis unilateral or bilateral retinoblastoma (RB) seen at CHLA (Children's Hospital Los Angeles). Exclusion Criteria: * Patients referred for second opinions only and not treated at CHLA for any reason.
Ages0 Years to 18 Years
SexAll
Lead sponsorChildren's Hospital Los Angeles
LocationsPhoenix, Arizona, United States; Los Angeles, California, United States; Atlanta, Georgia, United States; Chicago, Illinois, United States; Portland, Oregon, United States; Philadelphia, Pennsylvania, United States (+3 more sites)
Start date2017-01-01
NCT IDNCT04959097
Official listinghttps://clinicaltrials.gov/study/NCT04959097

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