Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histi
This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?
| Condition(s) | Supportive Care Needs of Caregivers |
|---|---|
| Status | Recruiting |
| Study type | Observational |
| Summary | This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases? |
| Who can participate | Inclusion Criteria: * Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim). * Proficiency to complete study assessments in English, evaluated at the time of consent. * Age 18 or over. Exclusion Criteria: * Participant unwilling to sign consent. * Participant unable to complete web-based assessments. |
| Ages | 18 Years |
| Sex | All |
| Accepts healthy volunteers | Yes |
| Lead sponsor | Memorial Sloan Kettering Cancer Center |
| Locations | New York, New York, United States |
| Start date | 2019-06-14 |
| NCT ID | NCT03990428 |
| Official listing | https://clinicaltrials.gov/study/NCT03990428 |