Swiss Cerebral Palsy Registry
The Swiss-CP-Reg is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with cerebral palsy (CP) in Switzerland. It was first implemented in 2017 in the paediatric clinics in Basel, Bellinzona, Bern, Geneva, Lausanne, St. Gallen and Zurich. It is currently e
| Condition(s) | Cerebral Palsy |
|---|---|
| Status | Recruiting |
| Study type | Observational |
| Summary | The Swiss-CP-Reg is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with cerebral palsy (CP) in Switzerland. It was first implemented in 2017 in the paediatric clinics in Basel, Bellinzona, Bern, Geneva, Lausanne, St. Gallen and Zurich. It is currently extended to all Swiss clinics and medical practices and adults will be invited to join the register in the coming years. The registry provides data for national and international monitoring and research. It supports research on CP in Switzerland and the exchange of knowledge between clinicians, researchers and therapists, with the goal to improve the treatment of children and adults with CP and optimizing their health and quality of life. |
| Who can participate | Inclusion Criteria: * Who were diagnosed with CP, confirmation of the diagnosis at the age of 5 years is required * Who are born, treated for CP or living in Switzerland, and * Who gave informed consent Exclusion Criteria: * Pure muscular hypotonia * Neurometabolic diseases (e.g. neuronal storage diseases, leukodystrophies) * Other progressive neurological diseases (e.g. spinocerebellar ataxias, hereditary spastic paraplegia, Rett syndrome, epileptic encephalopathy) |
| Ages | 0 Years |
| Sex | All |
| Lead sponsor | University of Bern |
| Locations | Aarau, Switzerland; Basel, Switzerland; Bellinzona, Switzerland; Bern, Switzerland; Bern, Switzerland; Biel, Switzerland (+6 more sites) |
| Start date | 2017-06-19 |
| NCT ID | NCT04992871 |
| Official listing | https://clinicaltrials.gov/study/NCT04992871 |