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Telehealth in MND-Research (TIM-R): A Research Database for MND

The aim of this study is to implement the Telehealth in MND system as a research database allowing people with MND to take part in research and provide data remotely (TiM-Research). TiM-Research is an online platform that helps people with MND in the UK take part in research. It brings MND research studies together in

Condition(s)MND (Motor Neurone DIsease)
StatusRecruiting
Study typeObservational
SummaryThe aim of this study is to implement the Telehealth in MND system as a research database allowing people with MND to take part in research and provide data remotely (TiM-Research). TiM-Research is an online platform that helps people with MND in the UK take part in research. It brings MND research studies together in one place, making it quick and easy to learn about opportunities to get involved. What's involved? Participants will receive information about a wide range of research studies that they can sign up for. This could include filling out questionnaires that help researchers understand how MND progresses, providing biosamples (e.g. saliva), or taking part in interviews and focus groups about their experiences. Participants can choose which studies they want to take part in. Partic
Who can participateInclusion Criteria: * People living with MND * Living in the UK
SexAll
Lead sponsorUniversity of Sheffield
LocationsSheffield, United Kingdom
Start date2024-12-14
NCT IDNCT07132879
Official listinghttps://clinicaltrials.gov/study/NCT07132879

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