TSC Biosample Repository and Natural History Database
The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the dise
| Condition(s) | Tuberous Sclerosis, Lymphangioleiomyomatosis |
|---|---|
| Status | Recruiting |
| Study type | Observational |
| Summary | The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively. |
| Who can participate | Inclusion Criteria: * Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM). Exclusion Criteria: \- |
| Sex | All |
| Lead sponsor | National Tuberous Sclerosis Association |
| Locations | Birmingham, Alabama, United States; Loma Linda, California, United States; Los Angeles, California, United States; Oakland, California, United States; Denver, Colorado, United States; Miami, Florida, United States (+20 more sites) |
| Start date | 2016-01 |
| NCT ID | NCT05676099 |
| Official listing | https://clinicaltrials.gov/study/NCT05676099 |